(Courtland, MN) – Bailey Johnson was just 5 days old when a routine hospital test changed the lives of her entire family.
Her parents, Curt and Deann Johnson of Courtland, were suddenly faced with the challenge of learning a mountain of information about their new daughter’s illness – and learning it quickly. Bailey was diagnosed with adrenal insufficiency, a condition that requires consistent, daily care. Her mother explains the condition:
There’s always a concern that she could need immediate and emergency medical care. But emergency personnel don’t have the authority to give life-saving medications to Bailey and people like her. Only doctors can administer the type of shots that Bailey would need. But Minnesota State Representative Clark Johnson (19A) has introduced a bill that would authorize emergency medical services personnel to administer emergency prescription medications.
The Johnson’s will testify at the Monday night hearing, hoping to advance that bill by telling Bailey’s story.
Deann said that before they brought their daughter home from the hospital, they were aware that emergency personnel were not allowed to give Bailey her medication if circumstances became dire. The family prepared for such an emergency by involving and educating everyone around Bailey. But she says that having an EMS with the authority to save Bailey’s life would be relief:
Deann had talked to Rep. Clark Johnson at one point about such a bill, but it was something they’d only discussed briefly. But when the family attended an outdoor festival, a frightening incident occurred that compelled Deann to contact Johnson to ask him to move forward with his idea. Bailey became very ill at the event and was in crisis despite the family doing everything they knew should help:
The family says the bill has incredible support, and while of course they hope to see it pass, they also feel they have an exceptional support system within the community and everyone is watching out for them:
The hearing will be before the Health and Human Services Finance Committee at 4:30 p.m. on Monday, April 16.
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